Welcome
Intracranial hypertension (IH) is the general term for the neurological disorders in which cerebrospinal fluid (CSF) pressure within the skull is too high. (Old names for IH include Benign Intracranial Hypertension and Pseudotumor Cerebri).
The Intracranial Hypertension Research Foundation is the only non-profit organization in the world devoted to supporting the medical research of chronic intracranial hypertension. We also provide assistance, education, and encouragement for individuals with chronic IH, their families and medical professionals.
Our mission is to discover why intracranial hypertension happens, along with new, effective treatments. Our ultimate goal is to find a cure.
IHRF News and Events
The Columbian: Vancouver Family Combats Rare Hypertension Condition
Pregnancy and Diamox Use Study Update: Additional Participants Are Needed!
IHRF Selected as Top 100 Charity in Round One of Chase Community Giving on Facebook
Lions Eye Bank of Oregon Award IHRF Co-Founder Highest Honor
IH Registry Neuro-Imaging Library Surpasses 4000 Images; Two New Studies Underway
IHRF Joins The American Brain Coalition (ABC)
Los Angeles Times Article Profiles A Mother's Efforts to Raise Awareness of Chronic IH
IHRF Establishes Neuro-Imaging Library at Oregon Health & Science University (OHSU)
Rare Disease Day 2010
Nearly 1 in 10 Americans Has A Rare Disease
On February 28, IHRF will join the effort organized by the National Organization of Rare Disorders (NORD) to raise awareness of rare diseases, including chronic intracranial hypertension, that affect nearly 30 million Americans and countless others worldwide.