Welcome
Intracranial hypertension (IH) is the general term for the neurological disorders in which cerebrospinal fluid (CSF) pressure within the skull is too high. (Old names for IH include Benign Intracranial Hypertension and Pseudotumor Cerebri).
The Intracranial Hypertension Research Foundation is the only non-profit organization in the world devoted to supporting the medical research of chronic intracranial hypertension. We also provide assistance, education, and encouragement for individuals with chronic IH, their families and medical professionals.
Our mission is to discover why intracranial hypertension happens, along with new, effective treatments. Our ultimate goal is to find a cure.
IHRF News and Events
IH Registry Provides Research Resource Data to NIH-Funded Database Built By OHSU, Harvard, 7 other institutions
Washington Governor Proclaims Feb. 28 as Rare Disease Day
The Columbian: Vancouver Family Combats Rare Hypertension Condition
Pregnancy and Diamox Use Study Update: Additional Participants Are Needed!
IHRF Selected as Top 100 Charity in Round One of Chase Community Giving on Facebook
Lions Eye Bank of Oregon Award IHRF Co-Founder Highest Honor
IH Registry Neuro-Imaging Library Surpasses 4000 Images; Two New Studies Underway
IHRF Establishes Neuro-Imaging Library at Oregon Health & Science University (OHSU)
Researchers Investigate Octreotide
Possible New Treatment for Idiopathic IH On Horizon?
Octreotide, a synthetic hormone that is sometimes used to treat tumors and certain endocrine disorders, has attracted interest recently as a possible new treatment option for idiopathic IH. Does it work? Read about the study from Greece.